Out of the Shadows - The Legacy of Pineland Logo

A New Name and Vision – Pineland Hospital and Training Center

Black and white photo of six girls sitting around a table, all wearing Camp Fire Girls uniforms, with papers and pencils. One is holding a bouquet of flowers.

Camp Fire Girls, ca. 1950 - Courtesy New Gloucester Historical Society

Superintendent Bowman was a proponent of the “medical model” of disability, which emphasized diagnosis and treatment of the individual over a systemic focus – people with developmental disabilities during this time were classified with words like “incurables” and “trainables”. He envisioned a diagnostic and research facility where the disabled could be cured or “fixed.” A name change in 1957 to Pineland Hospital and Training Center reflected his focus.

Text of 1957 Act Changing the Name of Pownal State School to Pineland Hospital and Training Center
1957 Act Changing the Name of Pownal State School to Pineland Hospital and Training Center

It is certainly plausible that this name change was influenced by the exposed abuses and neglect of the several years before – changing the name allowed the institution to have a fresh start, and the inclusion of the words “Hospital and Training Center” gave a veneer of scientific progress. 

Bowman believed that 40 percent of residents were “incurable” and needed custodial care, much of which was provided by “patients” labeled “trainable” and “educable.” He wanted to see higher-functioning patients get treatment and be released – but, like superintendents before and after him, he found that difficult as the higher-functioning residents were crucial as unpaid staff, caring for other residents, working in the kitchen, sewing, serving as maids, and doing farm work, among other tasks. 

Newspaper clipping from the Lewiston Daily Sun, March 7, 1957 – Headline: Pownal State School Renamed the “Pineland”.
Lewiston Daily Sun, March 7, 1957

But scientific progress costs money. The same year Pownal became Pineland, Governor Muskie proposed and got passed a sales tax hike from 2% to 3% – which was used to expand state services, including institutional care. In the next few years, the Maine Legislature would appropriate funds for a new infirmary at Pineland, underlining the evolving view of the institution as a state-of-the-art medical facility.

Newspaper clipping from the Lewiston Evening Journal, January 10, 1957 – Headline: Would Pay For Expanded State Services – Tells Republican Legislature Current Tax Sources Will Finance Existing Services.
Lewiston Evening Journal, January 10, 1957

During the 1950s and 1960s, Pineland added various physical and recreational therapists, social workers, clinical psychologists, built a gymnasium, expanded education, field trips, and other activities. Change was happening, including some residents being released into the community, although they often lacked necessary services and support.

Black and white picture of six boys sitting around a table dressed in boy scouts uniforms, using watercolor paints on pieces of paper.
Boy Scouts, ca. 1950 – Courtesy New Gloucester Historical Society
Black and white photo of six girls sitting around a table, all wearing Camp Fire Girls uniforms, with papers and pencils. One is holding a bouquet of flowers.
Camp Fire Girls, ca. 1950 – Courtesy New Gloucester Historical Society

But the hospital also experimented with tranquilizers and other drug therapies and used the residents for various types of research on what might ameliorate their disabilities.

The Pownal Parents Club that had formed in 1953 pushed for better conditions and better treatment for residents, and lobbied for sufficient funding.

Bowman cited “widespread indifference of the general public to meeting the needs of the retarded in any other way than by consignment to a remote institution.” But the public had been largely kept away from Pineland and taught to fear its residents during much of its history.

Newspaper clipping from the Lewiston Daily Sun, September 17, 1959 – Headline: Maine Council Votes Many State Projects – Include $606,000 for New Infirmary at the Center in Pownal – Total 2 ¼ Million
Lewiston Daily Sun, September 17, 1959

A new children’s psychiatric unit was also opened in 1961, with Dr. Bowman promising, “it will mark one of the greatest and most progressive steps forward in the treatment of the mentally disabled in Maine history.” (Lewiston Daily Sun, December 3, 1960) Around this time, Bowman himself began to express the view that many of those at Pineland could and should be returned to the community: “the mission and objective of Pineland is to return to the family, the community, and to outside civilization as many of the patients as possible, after they have received the maximum training and education we can provide here.” While he still viewed Pineland and institutionalization as a vital part of “treatment”, he argued that, “they should, if at all possible, be given a chance on the outside to have some semblance of meaningful existence, restricted as it may be.” (Lewiston Evening Journal, December 8,  1960)

Newspaper clipping from the Lewiston Daily Sun, December 3, 1960, pg 1 – Headline: New Unit Started At Pownal School – Psychiatric Hospital for Children in Construction
Lewiston Daily Sun, December 3, 1960
Newspaper clipping from the Lewiston Evening Journal, December 8, 1960 – Headline: Hope for Brighter Future May Be in Store for Hundreds of Mentally Retarded Patients
Lewiston Evening Journal, December 8, 1960

There were fears among the public that people with developmental disabilities could be dangerous if allowed to live in the community, spurred on by stories of former “defective delinquents” going on criminal rampages, but Dr. Bowman assured the press that “low mentality…has little, if any bearing on criminal tendency” and that “the release of persons from Pownal is no casual affair”. Bowman in this interview also admitted that residents of Pineland were treated as “slave staff” – used to care for their peers with more profound disabilities and “had to be kept on to help train new inmates”. (Lewiston Evening Journal, March 19, 1957)

Newspaper clipping from the Lewiston Evening Journal, March 19, 1957 – Headline: Are the Mentally-Deficient a Threat to Public? – No More So Than Any Other Person – Only When They Are Mistreated, Says Bowman
Lewiston Evening Journal, March 19, 1957
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Theme Alert!

Institutional Bias

Institutional Bias

It is easy to assume that institutions are the right place for people with significant needs – in an institution, the assumption is that we can keep them “safe”, provide all the care they need in one place, and people with disabilities can live with “people like them”. These assumptions were worked into the policies and laws until the systems and the biases were intertwined and interchangeable.

Despite the evidence that institutions do not provide better care, a more stimulating environment, or less expensive treatment options than the community, our systems still reflect the historical assumptions that built them. When asked if people would like to live in the community they sign a waiver from their right to an institution.  The “institutional bias” is imbedded within the current waiver system – how most people with developmental disabilities access services – makes getting good and services in the community harder.  For that matter, the “institutional bias” includes an unwritten value statement that people with developmental disability do not have a natural place within the community.  But is that true?  Doesn’t everyone have a place?

More troubling still, many organizations are beginning to look towards building new institutions, using very similar language to that of the early 1900’s. They point towards the failures of the community system as proof that we need large congregate settings for people with developmental disabilities.

What are the assumptions here?

Values

Values Check

Who and what do we value in our society? How do we determine someone’s “worth”, and whether they are deserving of help when they need it? Are all people really equal – and do we treat everyone as equally human?

People with developmental disabilities were sent to institutions because they were seen as useless or even dangerous to society. Their value in a place like Pineland rested on their potential for being trained to do menial labor – a Pineland resident could potentially get a furlough or even release from the institution if they could show that they could work.

In general, people with developmental disabilities throughout our history have been dismissed, patronized, and dehumanized. Doctors assumed that people with developmental disabilities didn’t feel pain, caretakers believed that they did not need friendships or hobbies or someone to communicate with, and society saw them as dangerous and unfit.

There were also people and moments in history that shifted our assumptions about the value of people with developmental disabilities – President Kennedy’s experience of loving his sister with disabilities led to huge policy shifts that impacted people with developmental disabilities across our country, and the brave self-advocates who organized a civil rights movement led directly to another president signing the Americans with Disabilities Act.

The question must be posed, what is the value of all potential members of the community, with or without disability, to the very health and fiber of the community?

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